Treasure the Moments

“We can no longer put the disease in the back of our minds as Wayne’s mobility, speech and dementia makes it impossible to ignore.”

My introduction to Parkinson’s disease began when my husband Wayne was diagnosed at the age of 47 years. With no formal training I took on the role of Wayne’s primary caregiver. The learning curve has been steep, but with both of our involvements with The Parkinson's Society of Alberta and the Parkinson’s Community we have learned a lot. Without their support, Wayne and I would be far less knowledgeable about the disease and the struggle would be much harder.  Being a member of the Parkinson’s Society made us realize that we’re not alone in the fight. 

Prior to attending the caregiver program, there were a number of obstacles we faced as Wayne struggled with his condition and loss of physical and motor skills. For example, use of the phone, remote controls, brushing teeth, bathing, and shaving require a lot more time than they used to. The computer is no longer possible as he struggles to dial numbers, press buttons, and type characters on the keyboard. Using basic kitchen appliances such as can openers and microwaves have become increasingly difficult.  Wayne’s worsening condition causes a great deal of stress in the home for everyone.

As Wayne’s primary caregiver, there are a number of things that I need to do to make each day more convenient ...read more