Does Outpatient Palliative Care Improve Patient-Centered Outcomes in Parkinson Disease?

Run Dates:  Ongoing

 

The University of Alberta is conducting a research study to investigate the outcomes of patients with Parkinson disease receiving palliative care versus usual care.  The goal of the study is to determine whether palliative care will improve patient quality of life and caregiver distress compared to usual care with a neurologist.  Palliative care involves looking at all symptoms of Parkinson disease including:  pain, caregiver distress, loss of hope in either the patient or family and using a team to work with you to find solutions.  Palliative care approaches can be used AT ANY TIME of an illness to provide patient-centered care.

Who is eligible to participate in the study?

You are eligible to participate in this study if you meet all of the following criteria:

  • You are a fluent English speaker
  • You are over the age of 40 years
  • You have a diagnosis of probable Parkinson disease
  • You live in Edmonton, AB or surrounding communities

What is required of the participants?

Your participation will involve:

  • Take part in five (5) clinic visits and four (4) telephone assessments over the course of one (1) year
  • If you are in the palliative care group, you will see the palliative care team in addition to the above clinic visits and telephone assessments
  • Each clinic visit/telephone assessment will involve answering questionnaires

University:  University of Alberta

Ethics ID: UofA57913

Contact:  Francis Cheung

                 T: 780-248-1797   E: fkcheung@ualberta.ca

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